Published 24 May 2020 Globally, an estimated 350 million people are affected by a rare disease diagnosis. Knowledge limitations persist for the majority of rare conditions due to systemic and structural challenges in healthcare and research. Disease-specific patient populations are often small and geographically dispersed; funding support for research is restricted; and diagnostic delays are commo

https://www.lupop.lu.se/article/establishing-patient-registries-rare-diseases-rationale-and-challenges - 2025-07-05

Published 20 May 2020 DORIS är ett verktyg som ska gå att använda genom hela processen för att göra forskningsdata tillgängliga: från beskrivning av forskningsdata till beställning av data för återanvändning eller granskning. Utvecklingen av systemet är uppdelat i flera olika faser. Läs mer på https://snd.gu.se/sv/nyheter/doris-gor-det-enklare-att-dela-data-snd.

https://www.lupop.lu.se/article/doris-gor-det-enklare-att-dela-data-snd - 2025-07-05

Published 21 May 2020 A call for proposals for funding of Nordic and Nordic-Estonian/Latvian collaboration projects on health data research on COVID-19 is now announced. The application deadline is 16 June 2020 13 CEST. Read more at https://www.nordforsk.org/calls/nordic-health-data-research-projects-co….

https://www.lupop.lu.se/article/nordic-health-data-research-projects-covid-19 - 2025-07-05

Published 22 May 2020 Ett särskilt aktuellt register dessa dagar är Svenska Intensivvårdsregistret, SIR, som dagligen rapporterar om antalet inlagda patienter med covid-19 på svenska intensivvårdsavdelningar. Representanter från SIR har arbetat intensivt tillsammans med Vetenskapsrådet för att dokumentera registrets innehåll i RUT och på så sätt göra det mer tillgängligt för forskning. Läs mer här

https://www.lupop.lu.se/article/svenska-intensivvardsregistret-sir-har-anslutits-till-metadataverktyget-rut - 2025-07-05

Published 23 May 2020 Nu finns möjlighet att lyssna på en initierad podd i två delar där forskare samtalar om virusets spridning, lärdomar från spanska sjukan samt ekonomiska konsekvenser av den nedstängning av världen som vi nu upplever. Poddcasten är framtagen som samarbete mellan Centrum för ekonomisk demografi (CED) vid Ekonomihögskolan i Lund och LU Futura - Lunds universitets tankesmedja för

https://www.lupop.lu.se/article/poddcast-att-forsta-corona-och-dess-konsekvenser - 2025-07-05

Published 25 May 2020 Job opening at Galapagos, a Biotech company with offices in Europe in Belgium (Mechelen), France (Romainville), the Netherlands (Leiden), Basel (Switzerland) and in Boston (US). Read more at https://careers.glpg.com/o/principal-biostatistician-belgium-the-nether….

https://www.lupop.lu.se/article/principal-biostatistician-belgium-netherlands-or-switzerland - 2025-07-05

Published 25 May 2020 Diabetes registries can be used to monitor the prevalence and incidence of diabetes. Diabetes registries are used in many countries for population management of diabetes, outcomes management, and development of Clinician finding Support Structure, for example, National Diabetes Registry (NDR) in Sweden and Singapore diabetes registry. New publication in Pakistan Journal of Me

https://www.lupop.lu.se/article/diabetes-registry-pakistan - 2025-07-05

Published 26 May 2020 Temporally and spatially highly resolved information on population characteristics, including demographic profile (e.g. age and sex), ethnicity and socio-economic status (e.g. income, occupation, education), are essential for observational health studies at the small-area level. Time-relevant population data are critical as denominators for health statistics, analytics and ep

https://www.lupop.lu.se/article/advances-mapping-population-and-demographic-characteristics-small-area-levels - 2025-07-05

Published 26 May 2020 This paper studies the effects of improvements in infant health produced by the introduction of sulphapyridine in the late-1930s as treatment against pneumonia on outcomes in adulthood. Based on longitudinal individual data for the whole population of Sweden 1968–2012 and archival data on the availability of sulphapyridine and applying a difference-in-differences approach, it

https://www.lupop.lu.se/article/infant-health-and-later-life-labor-market-outcomes-evidence-introduction-sulpha-antibiotics-sweden - 2025-07-05

Published 27 May 2020 Effective stewardship of data is a critical precursor to making data FAIR. The goal of this paper is to bring an overview of current state of the art of data management and data stewardship planning solutions (DMP). We begin by arguing why data management is an important vehicle supporting adoption and implementation of the FAIR principles, we describe the background, context

https://www.lupop.lu.se/article/data-management-planning-how-requirements-and-solutions-are-beginning-converge-show-all-authors - 2025-07-05

Published 27 May 2020 To investigate the risk of cancer in patients with biopsy-proven giant cell arteritis (GCA) from a defined population in southern Sweden. New publication in The Journal of Rheumatology

https://www.lupop.lu.se/article/malignancies-giant-cell-arteritis-population-based-cohort-study - 2025-07-05

Published 8 February 2018 PhD-courses of relevance for population research The strategic research area EpiHealth - Epidemiology for Health - together with LUPOP - Lund University Population Research Platform - now opens a call for proposals for new PhD - courses of relevance for population research. We will fund 3 - 5 courses during 2018 related to e.g. epidemiological data analysis, medical stati

https://www.lupop.lu.se/article/call-proposals - 2025-07-05

Published 28 May 2020 Food patterns were extracted using principal component analysis in 1726 individuals (aged 18–71 y, 55% women, mean BMI = 25.5 kg/m2) without diabetes from the population-based Malmö Offspring Study. The gut (fecal) microbiota was analyzed by sequencing the 16S ribosomal RNA gene (V1–V3 region). Prediabetes classification was based on fasting glucose ≥6.0 mmol/L and/or glycate

https://www.lupop.lu.se/article/health-conscious-food-pattern-associated-prediabetes-and-gut-microbiota-malmo-offspring-study - 2025-07-05

Published 28 May 2020 In this era of ‘big data’, there is growing recognition of the value of environmental, health, social and demographic data for research. Open government data initiatives are growing in number and in terms of content. Remote sensing data are finding widespread use in environmental research, including in low- and middle-income settings. While our ability to study environment an

https://www.lupop.lu.se/article/availability-access-analysis-and-dissemination-small-area-data - 2025-07-05

Published 29 May 2020 In acute myeloid leukemia (AML) FLT3 internal tandem duplication (ITD) and nucleophosmin 1 (NPM1) mutations provide prognostic information with clinical relevance through choice of treatment, but the effect of age and sex on these molecular markers has not been evaluated. New publication in Blood Advances

https://www.lupop.lu.se/article/prognostic-impact-flt3-itd-and-npm1-mutation-adult-aml-age-dependent-population-based-setting - 2025-07-05

Published 29 May 2020 The North Texas Concussion Registry (ConTex) was established in 2015 as a multi-institutional collaboration intended to study risk factors, recovery patterns and clinical outcomes associated with concussion across the lifespan, with a particular emphasis on sport-related concussion. New publication in BMJ Open

https://www.lupop.lu.se/article/north-texas-concussion-registry-contex - 2025-07-05

Published 30 May 2020 There is a growing recognition of significant, unmet palliative care needs in nursing facilities, yet limitations in the workforce limit access to palliative care services. Attention to palliation is particularly important when there are efforts to reduce hospitalizations to help ensure there are no unintended harms associated with treating residents in place. New publication

https://www.lupop.lu.se/article/role-palliative-care-registered-nurse-nursing-facility-setting - 2025-07-05

Published 30 May 2020 As research in treatments for neurocognitive diseases progresses, there is an increasing need to identify cognitive decline in the earliest stages of disease for initiation of treatment in addition to determining the efficacy of treatment. For early identification, accurate cognitive tests cutoff values for cognitive impairment are essential. New publication in Alzeheimer´s R

https://www.lupop.lu.se/article/age-related-effect-cognitive-performance-cognitively-healthy-elderly-mainly-caused-underlying-ad - 2025-07-05

Published 31 May 2020 Early onset preeclampsia (EOP) and late onset preeclampsia (LOP) have been differentiated with a cut‐point of ≤34 weeks. This classical definition has never been examined with respect to maternal characteristics by different gestational age cut‐points. We examined maternal characteristics in a population‐based cohort of 1736 preeclamptic deliveries at different gestational ag

https://www.lupop.lu.se/article/validation-34-week-gestation-definition-late-onset-preeclampsia-testing-different-cutoffs-30-37 - 2025-07-05

Published 31 May 2020 The incidence of cirrhosis for individuals in Sweden has previously been reported as stable/low among European countries. However, Swedish population-based studies are scarce and none of them included data from the most recent decade (2010–2019). We aimed to describe the incidence and aetiology of cirrhosis in the Halland region from 2011 to 2018, and to describe the severity

https://www.lupop.lu.se/article/incidence-aetiology-and-related-comorbidities-cirrhosis-swedish-population-based-cohort-study - 2025-07-05