By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 12 August 2021 Photo: Pixabay / Gerd Altmann Den 11 augusti höll regeringen pressträff för att presentera resultatet av utredningen Organisation, styrning och finansiering av forskningsinfrastruktur. Utredningen har letts av Tobias Krantz och föreslår olika sätt att utveckla och stärka svensk forskningsinfrastruktur, bland ann

https://www.lupop.lu.se/article/utredning-foreslar-ny-myndighet-att-samla-digital-infrastruktur - 2025-05-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 16 August 2021 An analysis of the Patient-Reported Outcome Measures Pilot from the Australian Orthopaedic Association National Joint Replacement Registry Read the paper at https://journals.plos.org/plosone/article?id=10.1371/journal.pone.02541…

https://www.lupop.lu.se/article/are-responders-patient-health-surveys-representative-those-invited-participate - 2025-05-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 16 August 2021 Kidney biopsy registries all over the world benefit research, teaching and health policy. Comparison, aggregation and exchange of data is however greatly dependent on how registration and coding of kidney biopsy diagnoses are performed. This paper gives an overview over kidney biopsy registries, explores how the

https://www.lupop.lu.se/article/coding-practice-national-and-regional-kidney-biopsy-registries - 2025-05-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 17 August 2021 The main purpose of arthroplasty registries is to collect information on patients, techniques, and devices to monitor and improve the outcome of the specific procedure. This study analyses the role played by registries in the orthopedic research community and describes publication trends, characteristics, and pa

https://www.lupop.lu.se/article/rise-registry-based-research-bibliometric-analysis - 2025-05-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 17 August 2021 Cancer registry data, supplemented by patient surveys, can provide a broader understanding of the quality of care and financial impacts of breast cancer among young women. Read the full paper at https://doi.org/10.1016/j.evalprogplan.2021.101967

https://www.lupop.lu.se/article/utility-linking-survey-and-registry-data-evaluate-interventions-and-policies-address-disparities - 2025-05-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 18 August 2021 Photo: Pixabay / Barroa_Artworks Our study found responder bias for age, but it did not exist for sex. Linking our sample frame to different national data registries, we determined that the characteristics of our non-responders were different from our responders on type of DM, CCI and SES. Read the paper at http

https://www.lupop.lu.se/article/danish-diabetes-musculoskeletal-cohort-non-responder-analysis-electronic-survey-using-registry-data - 2025-05-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 18 August 2021 Causal and prediction research usually require different methods, and yet their findings may get conflated when reported and interpreted. The aim of the current study is to quantify the frequency of conflation between etiological and prediction research, to discuss common underlying mistakes and provide recommen

https://www.lupop.lu.se/article/prediction-or-causality-scoping-review-their-conflation-within-current-observational-research - 2025-05-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 20 August 2021 Photo: flickr / Mitchell Joyce Vi planerar en studie som kommer att belysa om man kan använda ett billigt, men tekniskt förstärkt, fickultraljud för att undersöka kvinnor med symptom från brösten. Målet är att utveckla en undersökningsmetod som kan möjliggöra att kvinnor i länder med begränsade resurser får till

https://www.lupop.lu.se/article/ny-studie-fran-lunds-universitet-och-region-skane-brostdiagnostik-global-halsa - 2025-05-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 24 August 2021 Photo: Pixabay / Gerd Altmann This study aimed to develop and evaluate a systematic arrangement for improvement and monitoring of data quality of the National Spinal Cord (and Column) Injury Registry of Iran (NSCIR-IR)—a multicenter hospital-based registry. Read the paper at https://www.nature.com/articles/s4139

https://www.lupop.lu.se/article/impact-data-quality-assurance-and-control-solutions-completeness-accuracy-and-consistency-data - 2025-05-07

Published 24 August 2021 pixabay / Pronschee A registry of dementias based on clinical and administrative databases is valid and feasible. Its main contribution is to show the dimension of dementia in the health system. Read the paper at https://europepmc.org/article/med/29752034

https://www.lupop.lu.se/article/validity-computerized-population-registry-dementia-based-clinical-databases - 2025-05-07

Published 25 August 2021 Photo: Pixabay / Sasin Tipchai Our aim is to identify a few key issues to shape a far-reaching Regulation that might permit the flexible and dynamic functioning of RIPI (Regulation of the Italian Implantable Prostheses Registry) providing suggestions for other registries at national and international level. Read the paper at https://www.iss.it/documents/20126/0/ANN_21_02_0

https://www.lupop.lu.se/article/far-reaching-regulation-italian-national-registry-implantable-prostheses-possible-model-other-health - 2025-05-07

Published 27 August 2021 Photo: Pixabay / Angelo Esslinger The Nordic Arthroplasty Register Association (NARA) was established in 2007 by hip and knee arthroplasty registry leaders from Denmark, Norway, and Sweden. Purportedly, the idea of combining national databases was presented and discussed while sitting in a bar. Read the editorial at https://www.tandfonline.com/doi/full/10.1080/17453674.202

https://www.lupop.lu.se/article/different-yet-strong-together-nordic-arthroplasty-register-association-nara - 2025-05-07

Published 27 August 2021 Photo: Pixabay / Gerd Altmann In this article, we examine study designs for extending (generalizing or transporting) causal inferences from a randomized trial to a target population. Specifically, we consider nested trial designs, where randomized individuals are nested within a sample from the target population, and nonnested trial designs, including composite data-set de

https://www.lupop.lu.se/article/study-designs-extending-causal-inferences-randomized-trial-target-population - 2025-05-07

Published 1 September 2021 Photo: Pixabay / Gerd Altmann A key misunderstanding is the belief that the goal of a causal analysis is to “detect” an effect. Causal effects are not binary signals that are either detected or undetected; causal effects are numerical quantities that need to be estimated. Read the paper at https://www.sciencedirect.com/science/article/abs/pii/S0895435621002730

https://www.lupop.lu.se/article/causal-analyses-existing-databases-no-power-calculations-required - 2025-05-07

Published 1 September 2021 I ramverket kommer vi använda kunskap om biologisk mångfald, ekologiska processer, miljöpsykologi, och epidemiologi för att hitta en gemensam väg framåt för att bemöta dessa globala utmaningar i praktiken. Vi rekryterar nu tre postdoktorer som tillsammans kommer att koordinera forskningen i projektet. Läs mer och sök tjänsterna på https://lu.varbi.com/what:job/jobID:4224

https://www.lupop.lu.se/article/agenda-2030-postdoctoral-researcher-biodiversity-and-health - 2025-05-07

Published 2 September 2021 Photo: Pixabay / Sasin Tipchai Spine surgery research has improved considerably over the last few decades. Its’ most recent growth is in large part due to the mounting increase in studies conducted using national databases and registries. With easy access to a large number of patients, the benefit of these registries has become evident. However, as with any research, thi

https://www.lupop.lu.se/article/big-data-registries-spine-surgery-research-lurking-dangers - 2025-05-07

Published 2 September 2021 Modern Epidemiology 4th is a gigantic project completed in grand style. One can only imagine all the considerations and discussions about content, terminology, ordering, et cetera that the authors had to go through and agree on to make this edition happen. Read the review at https://link.springer.com/article/10.1007%2Fs10654-021-00778-w

https://www.lupop.lu.se/article/book-review-modern-epidemiology-4th-edition - 2025-05-07

Published 5 September 2021 Photo: Pixabay / geralt The Department of Public Health contributes to teaching in medicine, public health science, sport science and nursing. At the department, you will have approx. 200 colleagues, including 90 academic staff members and a corresponding number of PhD students. Available positions: Tenure Track Assistant Professor at the Department of Public Health Prof

https://www.lupop.lu.se/article/available-positions-department-public-health-aarhus-university - 2025-05-07

Published 7 September 2021 Photo: Pixabay / congerdesign The German RheumaDatenRhePort (RHADAR) registry encompasses a network of rheumatologists and researchers in Germany providing pseudonymized real-world patient data and allowing timely and continuous improvement in the care of RMD patients. Read the paper at https://www.jmir.org/2021/5/e28164

https://www.lupop.lu.se/article/real-world-rheumatology-registry-and-research-consortium-german-rheumadatenrheport-rhadar-registry - 2025-05-07

Published 7 September 2021 Photo: Pixabay / www_slon_pics In this editorial, we discuss the current state-of-play of PROMs collection by kidney registries and provide an overview of what is (un)known about the feasibility and effectiveness of PROMs in CKD and other conditions. Read the paper at https://academic.oup.com/ckj/article/14/6/1495/6173985

https://www.lupop.lu.se/article/role-kidney-registries-expediting-large-scale-collection-patient-reported-outcome-measures-people - 2025-05-07