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A large cohort, consisting of versatile individual-level phenotype and genotype data, can be constructed by integrating data from several biobanks and health data registers in Finland. Co-operation with biobanks is straightforward. However, long time periods need to be reserved when biobank resources are linked with national register data. Read the paper at https://journals.sagepub.com/doi/full/10

https://www.lupop.lu.se/article/integrating-data-multiple-finnish-biobanks-and-national-health-care-registers-retrospective-studies - 2025-12-11

About 30 million people in the EU and USA, respectively, suffer from a rare disease. Driven by European legislative requirements, national strategies for the improvement of care in rare diseases are being developed. Read the paper at https://ojrd.biomedcentral.com/articles/10.1186/s13023-021-01831-3

https://www.lupop.lu.se/article/how-design-registry-undiagnosed-patients-framework-rare-disease-diagnosis-suggestions-software-data - 2025-12-11

In a prospective study, we sought to determine acceptability of linkage of administrative and clinical trial data among Canadian patients and Research Ethics Boards (REBs). The goal is to develop a more harmonized approach to data, with potential to improve clinical trial conduct through enhanced data quality collected at reduced cost and inconvenience for patients. Read the paper at https://www.n

https://www.lupop.lu.se/article/canadian-prospective-study-linkage-randomized-clinical-trial-cancer-and-mortality-registry-data - 2025-12-11

Du kommer att samla in och ställa samman kunskap om forskningsdata och dess hantering i biobankskohorter, såväl i Umeå som nationellt. Målet är att peka ut förbättringsområden, för förbättrade och förenklade flöden för forskningen. Parallellt kommer du att arbeta med att ge konkret stöd till forskare inom olika biobanksprojekt. Läs mer och ansök på https://www.umu.se/jobba-hos-oss/lediga-jobb/fors

https://www.lupop.lu.se/article/umea-universitet-soker-forskningssamordnare-med-fokus-pa-processer-biobankers-forskningsdata - 2025-12-11

Detta forskningsprojekt syftar till att undersöka om det finns patientgrupper som behöver extra mycket resurser, och vad som i så fall skiljer dessa patienter från patienter som inte behöver lika stora resurser. Läs mer om studien på https://www.lupop.lu.se/resursfordelning-och-utfall-inom-intensivvarden

https://www.lupop.lu.se/article/ny-studie-resursfordelning-och-utfall-inom-intensivvarden - 2025-12-11

Vi avser i detta projekt undersöka om vi med maskininlärning (artificiell intelligens, AI) kan träna en dator att känna igen mönster i akutpatienters data, såsom tidigare sjukdomar, läkemedelsanvändning, undersökningsresultat och sociala faktorer, för att sedan kunna förutsäga vilken eller vilka av de vanligaste sjukdomarna patienten har, som orsakar andningssvårigheterna. Syftet är att patienter

https://www.lupop.lu.se/article/ny-studie-maskininlarning-battre-diagnostik-och-behandling-av-vuxna-patienter-som-soker-sjukvard-pa - 2025-12-11

We are looking for an assistant researcher in Epidemiology for work that is linked to a thematic collaborative initiative on improved pandemic preparedness that has received internal funding from Lund University 2021 – 2024. The initiative is a truly interdisciplinary collaboration for research and infrastructure development that involves Lund university, Umeå university, Halmstad university, Regi

https://www.lupop.lu.se/article/new-position-assistant-researcher-epidemiology - 2025-12-11

Tonsil surgery is a daily procedure at Ear, Nose and Throat (ENT) departments as well as ENT practices. Despite national tonsil guidelines in Denmark, no national survey has been introduced. Read the full paper here.

https://www.lupop.lu.se/article/first-experiences-implementation-swedish-tonsil-register-denmark - 2025-12-11

The Nordic countries are Denmark, Finland, Iceland, Norway, and Sweden and comprise a total population of approximately 27 million. The countries provide unique opportunities for joint health registry-based research in large populations with long and complete follow-up, facilitated by shared features, such as the tax-funded and public health care systems, the similar population-based registries, a

https://www.lupop.lu.se/article/nordic-health-registry-based-research-review-health-care-systems-and-key-registries-0 - 2025-12-11

En studie rörande effekter av åldersspecifika rekommendationer i samband med Covid-19-pandemin, i vilken flera forskare från Lunds universitet medverkat, har nyligen publicerats "pre-print" och i samband med detta uppmärksammats i diverse media. Preprint-artikeln finns att läsa på https://doi.org/10.1101/2021.07.22.21260973. En intervju med en av medförfattarna (Tove Fall) sändes i TV4 5 augusti,

https://www.lupop.lu.se/article/covid-forskning-fran-lunds-universitet - 2025-12-11

Quality improvement programs and clinical trial research experienced disruption due to the coronavirus disease 2019 (COVID-19) pandemic. Vascular registries showed an immediate impact with significant declines in second-quarter vascular procedure volumes witnessed across Europe and the United States. To better understand the magnitude and impact of the pandemic, organizations and study groups sent

https://www.lupop.lu.se/article/impact-covid-19-pandemic-vascular-registries-and-clinical-trials - 2025-12-11

Ny registerstudie från Lunds Universitet Läs Aftonbladets rapportering här, eller gå direkt till publikationen i Plos one.

https://www.lupop.lu.se/article/unga-som-ater-p-piller-kan-ma-samre-andra - 2025-12-11

he Department of Public Health, Faculty of Health, Aarhus University invites applications for one to three positions as full professor in research fields of relevance for the Department of Public Health including research related to Biostatistics, Epidemiology, General Practice, Nursing, Public Health Science, Sports Science, Toxicology or Occupational Medicine. The positions are permanent full-ti

https://www.lupop.lu.se/article/open-position-professor-department-public-health - 2025-12-11

Prediction models are useful tools in the clinical management of colon cancer patients, particularly when estimating the recurrence rate and, thus, the need for adjuvant treatment. However, the most used models (MSKCC, ACCENT) are based on several decades-old patient series from clinical trials, likely overestimating the current risk of recurrence, especially in low-risk groups, as outcomes have i

https://www.lupop.lu.se/article/accurate-population-based-model-individual-prediction-colon-cancer-recurrence - 2025-12-11

Den 11 augusti höll regeringen pressträff för att presentera resultatet av utredningen Organisation, styrning och finansiering av forskningsinfrastruktur. Utredningen har letts av Tobias Krantz och föreslår olika sätt att utveckla och stärka svensk forskningsinfrastruktur, bland annat genom att inrätta en ny myndighet med ansvar över digital infrastruktur. En sammanfattning av utredningen finns på

https://www.lupop.lu.se/article/utredning-foreslar-ny-myndighet-att-samla-digital-infrastruktur - 2025-12-11

An analysis of the Patient-Reported Outcome Measures Pilot from the Australian Orthopaedic Association National Joint Replacement Registry Read the paper at https://journals.plos.org/plosone/article?id=10.1371/journal.pone.02541…

https://www.lupop.lu.se/article/are-responders-patient-health-surveys-representative-those-invited-participate - 2025-12-11

Kidney biopsy registries all over the world benefit research, teaching and health policy. Comparison, aggregation and exchange of data is however greatly dependent on how registration and coding of kidney biopsy diagnoses are performed. This paper gives an overview over kidney biopsy registries, explores how these registries code kidney disease and identifies needs for improvement of coding practi

https://www.lupop.lu.se/article/coding-practice-national-and-regional-kidney-biopsy-registries - 2025-12-11

The main purpose of arthroplasty registries is to collect information on patients, techniques, and devices to monitor and improve the outcome of the specific procedure. This study analyses the role played by registries in the orthopedic research community and describes publication trends, characteristics, and patterns of this field of research. Read the full paper at https://www.tandfonline.com/do

https://www.lupop.lu.se/article/rise-registry-based-research-bibliometric-analysis - 2025-12-11

Cancer registry data, supplemented by patient surveys, can provide a broader understanding of the quality of care and financial impacts of breast cancer among young women. Read the full paper at https://doi.org/10.1016/j.evalprogplan.2021.101967

https://www.lupop.lu.se/article/utility-linking-survey-and-registry-data-evaluate-interventions-and-policies-address-disparities - 2025-12-11

Our study found responder bias for age, but it did not exist for sex. Linking our sample frame to different national data registries, we determined that the characteristics of our non-responders were different from our responders on type of DM, CCI and SES. Read the paper at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8180289/

https://www.lupop.lu.se/article/danish-diabetes-musculoskeletal-cohort-non-responder-analysis-electronic-survey-using-registry-data - 2025-12-11