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A project jointly conducted by the Nordic national statistical institutes and funded by NordForsk was initiated in 2015. The project, Nordic Microdata Access Network (NordMAN), seeks to establish a single pan-Nordic solution to facilitate researchers' access to the Nordic metadata compiled for statistical purposes, and to provide an overview of the existing Nordic registers. The project’s common N

https://www.lupop.lu.se/article/nordman-facilitates-researchers-access-nordic-microdata-and-provides-metadata-existing-nordic - 2025-11-27

Data from population-based cancer registries are often used to compare cancer survival between countries or regions. The ICBP SURVMARK-2 study is an international partnership aiming to quantify and explore the reasons behind survival differences across high-income countries. However, the magnitude and relevance of differences in cancer survival between countries have been questioned, as it is argu

https://www.lupop.lu.se/article/exploring-impact-cancer-registry-completeness-international-cancer-survival-differences-simulation - 2025-11-27

We propose combining population-based register data with a nested clinical cohort to correct misclassification and unmeasured confounding through probabilistic quantification of bias. We have illustrated this approach by estimating the association between knee osteoarthritis and mortality. We used the Swedish Population Register to include all persons resident in the Skåne region in 2008 and asses

https://www.lupop.lu.se/article/probabilistic-quantification-bias-combine-strengths-population-based-register-data-and-clinical-0 - 2025-11-27

Based on discharge summaries and brain imaging reports, we estimated the positive predictive value (PPV) of a first-ever diagnosis code for ICH (ICD-10, code I61) for all patients in the Region of Southern Denmark (1.2 million) during 2009– 2017 according to either DNPR or DSR. We estimated PPVs for any non-traumatic ICH (a-ICH) and spontaneous ICH (s-ICH) alone (ie, without underlying structural

https://www.lupop.lu.se/article/validity-intracerebral-hemorrhage-diagnoses-danish-patient-registry-and-danish-stroke-registry - 2025-11-27

Participants are members of the Maccabi Health Services, 40–65 years of age, with exquisitely detailed laboratory, medical diagnoses and medication data available in the Maccabi electronic medical records since 1998. Data collected through IRAP include genetic, sociodemographic, cognitive, brain imaging, lifestyle, and health-related characteristics at baseline and every three years thereafter. Re

https://www.lupop.lu.se/article/israel-registry-alzheimers-prevention-irap-study-design-and-baseline-characteristics - 2025-11-27

Large prospective cohort studies may offer an opportunity to study the etiology and natural history of rare cancers. Cancer diagnoses in observational cohort studies are often self-reported. Little information exists on the validity of self-reported cancer diagnosis, especially rare cancers, in Canada. This study evaluated the validity of self-reported cancer diagnosis in Alberta’s Tomorrow Projec

https://www.lupop.lu.se/article/importance-cancer-registry-linkage-studying-rare-cancers-prospective-cohorts - 2025-11-27

Acquisition of data on clinical performance is essential to improve outcomes in surgery. Large, national datasets allow hospitals to monitor events involving patient safety, complications, and benchmark against peer hospitals and facilitate quality improvement (QI) development. Although clinical datasets are often preferable, administrative data also have potential for actionable QI. Hospitals sho

https://www.lupop.lu.se/article/administrative-and-registry-databases-patient-safety-tracking-and-quality-improvement - 2025-11-27

A nationwide random sample of 500 children (6–17 years) diagnosed with depression between 1996 and 2016 was identified in the DPCRR. Psychiatric hospital records were reviewed and rated using an online checklist. The primary outcome was whether depressive symptoms and functional impairment documented in hospital records justified a depressive disorder diagnosis based on ICD‐10 or DSM‐5 diagnostic

https://www.lupop.lu.se/article/validity-child-and-adolescent-depression-diagnoses-danish-psychiatric-central-research-register - 2025-11-27

A cross sectional study was piloted at a tertiary hospital and a secondary level hospital in Botswana. The study consisted of two stages: stage 1 - stakeholders' consultation and trauma registry prototype was designed. Stage 2 consisted of two phases: Phase I involved retrospective collection of existing data from existing data collection tools and Phase II collected data prospectively using the p

https://www.lupop.lu.se/article/developing-trauma-registry-middle-income-country-botswana - 2025-11-27

A nationwide random sample of 500 children (6–17 years) diagnosed with depression between 1996 and 2016 was identified in the DPCRR. Psychiatric hospital records were reviewed and rated using an online checklist. The primary outcome was whether depressive symptoms and functional impairment documented in hospital records justified a depressive disorder diagnosis based on ICD‐10 or DSM‐5 diagnostic

https://www.lupop.lu.se/article/validity-child-and-adolescent-depression-diagnoses-danish-psychiatric-central-research-register-0 - 2025-11-27

Anna Tegunimataka awarded prize for best dissertation at LUSEM Anna Tegunimataka, who finished her PhD in economic history last June, has been awarded the Färs and Frosta Prize for best doctoral dissertation at LUSEM. The prize is 100,000 SEK. The titel of her thesis is: Trajectories of Integration: Naturalization, Intermarriage and Education in Denmark, 1980-2015

https://www.lupop.lu.se/article/population-research-awarded-fars-and-frosta-prize - 2025-11-27

The Swedish Research Council and NSFC will have joint administration of the call and make a joint decision by using a panel consisting of both Swedish and Chinese evaluators. More information here.

https://www.lupop.lu.se/article/research-project-grant-research-collaboration-between-china-and-sweden - 2025-11-27

Right before the Christmas Holidays on the 17th of December 2020 the EOSC Association held its very first General Assembly. The EOSC Association has put a Governance in place - EOSC-Nordic (eosc-nordic.eu)

https://www.lupop.lu.se/article/eosc-association-has-put-governance-place - 2025-11-27

Från och med 2021 gör Vetenskapsrådet en ny indelning av beredningsgrupperna inom naturvetenskap och teknikvetenskap. Syftet är att få en jämnare fördelning av ansökningar mellan dem. Ny indelning av beredningsgrupper inom naturvetenskap och teknikvetenskap - Vetenskapsrådet (vr.se)

https://www.lupop.lu.se/article/ny-indelning-av-beredningsgrupper-inom-naturvetenskap-och-teknikvetenskap - 2025-11-27

Sverige var först i Europa med att lansera en nationell dataportal för forskning om covid-19. Portalen har växt i takt med att fler forskningsprojekt har tillgängliggjort sina data, nya projekt har startat och nya datatjänster etablerats. Scilifelab driver portalen i samverkan med Vetenskapsrådet. Den svenska covid-19-dataportalen växer - Vetenskapsrådet (vr.se)

https://www.lupop.lu.se/article/den-svenska-covid-19-dataportalen-vaxer - 2025-11-27

The relative new subspecialty 'cardio-oncology' was established to meet the growing demand for an interdisciplinary approach to the management of cancer therapy-related cardiovascular adverse events. In recent years, specialised cardio-oncology services have been implemented worldwide, which all strive to improve the cardiovascular health of cancer patients. However, limited data are currently ava

https://www.lupop.lu.se/article/oncor-design-dutch-cardio-oncology-registry - 2025-11-27

The acquisition rate during 2012–2018 was compared with Swedish national databases, while registered data in 89 selected variables (67 mandatory) was compared with medical records of 1860 randomly selected patients from all bariatric centers (n = 39–43) reporting to SOReg. The evaluation was done by 1 independent observer. Completeness of data in the entire registry for the same time period was st

https://www.lupop.lu.se/article/high-acquisition-rate-and-internal-validity-scandinavian-obesity-surgery-registry - 2025-11-27

The premise of Open Science is that research and medical management will progress faster if data and knowledge are openly shared. The value of Open Science is nowhere more important and appreciated than in the rare disease (RD) community. Research into RDs has been limited by insufficient patient data and resources, a paucity of trained disease experts, and lack of therapeutics, leading to long de

https://www.lupop.lu.se/article/case-open-science-rare-diseases - 2025-11-27

FCR data are based on independent cancer report forms (CRFs) from both clinicians and pathologists. Data from patients diagnosed with CRC during a randomized, population-based CRC screening program between 2004 and 2012 were extracted from the FCR and compared to data extracted from the original clinical patient records of these individuals by two gastrointestinal surgeons. The study focused on tu

https://www.lupop.lu.se/article/accuracy-finnish-cancer-registry-colorectal-cancer-data-comparison-between-registry-data-and - 2025-11-27

Den 10 februari höll SND ett webbinarium om verksamhetsarkitektur och forskningsdata. Webbinariet anordnades av Monica Lassi (Lunds universitet) och Mikael Wettercrantz (Karolinska institutet). De berättade om metoder och erfarenheter av att skapa överblick inom sina respektive verksamheter, och det nationella samarbete som håller på att växa fram. Läs mer på https://snd.gu.se/sv/nyheter/lokalt-pr

https://www.lupop.lu.se/article/lokalt-projekt-blev-nationellt-samarbete-okad-samsyn-inom-forskningsdataomradet - 2025-11-27